Update on Jackie

Jackie's status:
Jackie has had torticollis since she was born. We have been working on it with physical therapy and a botox treatment to help fix her "tilt" of the head. We also did helmet therapy to fix the shape of her head due to the torticollis. Now more than a year late she has relapsed b/c of us being sick every month in the fall (she was fatigued and that doesn't help with the strength of her neck) and her not wearing her glasses. We went to our physical therapist and they recommended seeing the specialist again. Here is what we concluded:

Went to Pediatric Rehabilitation Specialist again and they agreed she is not a candidate for surgery!!!!!! She is on the fence whether or not she needs botox again. About half to 2/3rds of their patients, this is common to receive botox twice. We are going to get a second opinion about her eyes to see if the vision might be a problem with the torticollis. In about 1/4 of patients there is an underlying problem with the vision called: 4th cranial nerve palsy.

She actually has gotten better with the tilt in the last month, b/c we have been more adamant with the glasses.

Secondly Jackie is proned to small seizures and is currently on a drug to help get rid of them. We found this out in the summer after receiving the botox treatment. It is a good thing we are getting most of these medical treatments taken care of.

Before and After - Missa's Hair

 

 

Antelope Island

 

MRI for Jackie

To keep everyone updated on Jackie's stuff she has... today she got an MRI. The neurologist at Primary Children's Hospital recommended it. She received an EEP last week in conjunction with everything. We went in early and sedated her, made sure she was asleep. After getting her all positioned correctly in the MRI machine (took 15 minutes) they started. Right after the doors shut to start the MRI Jackie held her breath and her oxygen levels dropped. The nurses ran in and immediately assisted her. It took them about 20 minutes to make sure she was fine and then I heard her babbling.

They started the procedure again with her slightly awake. One of the nurses stayed in with her to help put her back to sleep the "old" way (stroking her forehead). That did it and we got on with the MRI smoothly after that.
When it was done two hours had passed by since getting to the hospital. The Pediatrician with us said she needed to stay two hours after having the anesthesia b/c she had a reaction (the holding the breath). So we stayed till 10:45am. Wow what a morning.
NOTE: The reason for getting a MRI and EEP is because she is having small unresponsive episodes that are a concern. Like a seizure, they want to find the source of this.

Then after that I had an OB appt that I went to after dropping Jackie at home.

Priesthood Session

 

The Boys, I mean "Men" attending the Priesthood Session of Genereal Conference. They weren't able to make it in, only 10 feet from the door when the closed them b/c it was too full. But they still had fun! :)

Hiking Malan's Peak

 

New phone number

Hey family!
Our new home phone is 801-675-3045. We still have our cell phones as normal. We are trying the MagicJack... it is a land-line hooked into the internet.
Thanks
The Nelsons

Lovely face

 

July 24th Weekend

 

Owen Daniel Nelson

Welcome to the world baby Owen

Born- July 14th at 10:18 AM

8 lbs 6 oz and 22 inches long

Lots of curly black hair and DIMPLES!!!

Little Owen came so fast that Grandma Linda and Aunt Lisa didn't even make it to the hospital in time. Brittney was supposed to be induced some time today but she called me this morning around 8:30 to let me know she was already in labor and that she was heading to the hospital. Then Brad called me when they got to the hospital around 9:30. He told me Brittney was already dialated to an eight. I left right away but by the time I got to their apartment to pick up Brittney's mom the baby was already here. Brittney didn't even get her epidural!

Mom and Baby are doing great and Lily loves her baby brother. Daddy is happy to have a son born on the day of the All Star game!
Grandma Barbara gets here tonight and then Grandpa Dan will be here next week!

Happy 4th of July

 

Cameron

Dan and Barb at Lake Tahoe, Fall 2008. Brad, Brit and Lilia came too and made it a fun time.

It feels better knowing your going to be a mom of 2... when you have a little girl as sweet as her.

I know... I know... Im STILL PREGNANT!

crazy babies

 

Hardware Elk Ranch

 

 

 

January 2009

Since no one has posted in a while, I thought I would be the first. Here are some updated pictures of our family during the past month.
ALSO, I would love it if more family members would post other than just us and Travis/Lisa. Thanks!:) Barb, I love to see pictures of you guys.

 

 

 

 

First Big Snow Storm in Logan